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Author Archives: PSPA Ireland
PSP –Our Lives Changed
My husband was diagnosed with Progressive Supranuclear Palsy (PSP) in January 2013. He left earth the 26th of February 2016 aged 59. On the 26th of September 2015 my husband responded badly to a prescribed medication. Though it was not … Continue reading
CBD- Our Story
My mother had Corticobasal Degeneration (CBD) and over the course of the first 18 months from her diagnosis her mobility disimproved considerably. We were lucky to live in Dublin, quite close to the hospital where she attended the neurologist. However, … Continue reading
Read Gerry’s story in the lead up to the launch of “We Need Our Heads Examined” campaign
Gerry was lucky to be able to access one of only three early supported discharge teams for stroke patients in the entire country. Read Gerry’s story in the lead up to the launch of “We Need Our Heads Examined” campaign … Continue reading
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Tagged campaign, nai, PSPA Ireland, stroke patient
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PSPA Ireland and 10 other organisations sign a letter calling for investment in Neurorehabilitation Services
Sir, Professor Joe Harbison’s opinion piece in today’s Irish Times (14.06.2016) concludes that “those least able to articulate their case will end up with the worst care”. This is not just true for people with stroke but for all the … Continue reading
Posted in campaigns
Tagged nai, nuerorehabiliatation, PSPA Ireland
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Launch of Campaign Calling for Action On Rehabilitation Services “We Need Our Heads Examined”
On Thursday 23rd June, the Neurological Alliance of Ireland, together with fifteen of its member organisations will launch a new campaign “We Need Our Heads Examined” calling for investment in rehabilitation services. There is a dire shortage of rehabilitation services … Continue reading
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Tagged nai, pspa, rehabilitaion
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Sign up now -VHI Womens Mini Marathon 2016, Monday 6th June
You can run, jog or walk for PSPA Ireland Date: Bank Holiday Monday, 6th June 2016 Distance: 10K Start: Baggot Street, Dublin 2 Finish: Fitzwilliam Square, Dublin 2 How To Enter: Fill out the application form which … Continue reading
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Join the annual Unity Walk 10th April 2016
PSPA Ireland have joined the Parkinson’s Association again this year for the annual Unity Walk to unite in a common voice to raise awareness of people living with PSP, CBD and Parkinson’s. This day is a great opportunity to get … Continue reading
Posted in Events, Uncategorized
Tagged unity walk
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Reminder – PSPA Ireland Support Group Meeting, Dublin – Tues. 5th April
Date: Tuesday 5th April 2016 Time: 12.00 h- 14.00h Venue: Mater Misericordiae University Hospital, Centre for Nurse Education, Classroom 5, 1st Floor Nelson St., Dublin 7(opposite Eccles Street entrance to Hospital). Places are limited so please book by email: pspa.ireland@gmail.com or … Continue reading
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Factsheet from Neurological Alliance of Ireland on neurological conditions and the asks in the run up to the election
Election Manifesto 2016 800000 Minds Matter
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International Rare Disease Day 2016 – NAI launches conference report
The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes, together with other stakeholders to explore some of the challenges and potential solutions to improving understanding of and response to the needs … Continue reading
Posted in Report
Tagged brain research, nai, pspa, Rare Disease Day
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PSPA Ireland 