Category Archives: Uncategorized

Upcoming Events: Get Rare Aware Campaign RHA F 17th April 2023- 12.00h

There are many rare diseases and many differences yet most people with a rare disease experience the same issues such as delays in diagnosis, as lack of access to services, isolation and no access to treatment or cure. We in … Continue reading

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Patients Deserve Better Neurorehabilitation Campaign goes to Leinster House

http://www.patientsdeservebetter.ie

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Kieron Wood: The man who was not afraid to speak out

Kieron Wood was a barrister, journalist and former RTE legal Affairs Correspondent but he was also a person who faced the challenges of a diagnosis of Progressive Supranuclear Palsy (PSP) with tenacity and bravery. When he was first diagnosed and … Continue reading

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Reminder: Support Group Meeting – Monday 13 March 2023

COME ALONG AND JOIN US    Monday 9th January   Monday 13th February   Monday 13th March   Monday  3rd April   Monday  8th May   Monday 12th June   Monday 11th September   Monday  9th October   Monday 13th … Continue reading

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Brain Awareness Week: Talk on PSP & CBD by Dr. Shane Lyons

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Happy Christmas – See you in the New Year

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Support Group Meeting : Book now for 9th January 2023

COME ALONG AND JOIN US    Monday 9th January   Monday 13th February   Monday 13th March   Monday  3rd April   Monday  8th May   Monday 12th June   Monday 11th September   Monday  9th October   Monday 13th … Continue reading

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Patients Deserve Better-New Campaign – Coming Soon!

Community neurorehabilitation teams provide vital care for people with a wide range of neurological conditions. However only 15% of patients have access to a community neurorehabilitation team. PSPA Ireland  will join with the Neurological Alliance of Ireland and twenty other … Continue reading

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Reminder Support Group Meeting  – Monday 5th December 2022

COME ALONG AND JOIN US PSPA Ireland Support Group Meeting on Zoom Dates for remainder of 2022:                                                                                                        Monday  5th December  Time: 11.00h – 12.00h  The  meeting will offer people diagnosed with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), … Continue reading

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New Focus to Patients Deserve Better Campaign

 PSPA Ireland has been working with the Neurological Alliance of Ireland as part of their “Patients Deserve Better” campaign to call for action to tackle the shortage of specialist nurses in neurology services. A very successful pre-budget campaign led to … Continue reading

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