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Author Archives: PSPA Ireland
PSPA Ireland Support Group Meeting- September 2026
COME ALONG AND JOIN US Monday 7th September Time: 11am – 12:30 BOOKING NECESSARY These meetings offers people diagnosed with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration/Syndrome (CBD/S), their carers, families and friends an opportunity to meet with us, … Continue reading
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Kicking CBD – 12th Sept. 2026
Kicking CBD organised by Jack Finnegan who plays for Point Celtic Football Club in Dundalk. Jack lost his gran to the rare progressive brain disorder; Corticobasal Degeneration (CBD) and his aunt Bernadette to dementia. They were important people in his … Continue reading
Matt Jupe and the team conquer Ben Nevis for PSP
Climbing Ben Nevis for PSP Congratulations to Matt Jupe and this great team: Nick Jupe, Patrick Murphy, Séan O’Brien and Stephen O’Brien on their successful climb up Ben Nevis. Initially diagnosed with Parkinson’s Disease then, re-diagnosed with Progressive Supranuclear Palsy … Continue reading
World Brain Day:Declaration on Advancing Neurological conditions
The Declaration on Advancing Neurological Health launched On 22 July 2026-World Brain Day , a coalition of Irish and European organisations representing patients, researchers and clinicians launched a Declaration on Advancing Neurological Health The declaration calls on Ireland to champion … Continue reading
EU Presidency Event
EU Presidency Event: Neurology at the Forefront of Innovation in Knowledge – Based Healthcare and Research Across Europe. On World Brain Day, 22nd July the Neurological Alliance of Ireland (NAI) along with Future Neuro and partners: the European Brain Council, … Continue reading
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Joe McCarthy Remembered
Joe Mc Carthy : A warm smile, a good heart and a great family man. We would like to express our condolences to Anna, Luke and Ciara and their extended family on the sad loss of Joe Mc Carthy from … Continue reading
VHI 2026 and 2027
We would like to congratulate and thank two wonderful ladies Nellie Jones and Gemma McCarrick who took part in VHI Women’s Mini Marathon to support PSPA Ireland on 31st May and finished with a smile on their faces having achieved … Continue reading
Climbing Ben Nevis for PSP – Matt Jupe
“This climb means so much more to me than just reaching the top”. Matt Jupe was recently re-diagnosed from Parkinson’s to PSP (Progressive Supranuclear Palsy), a rare condition that affects around 250 – 300 people across Ireland. “It’s something very … Continue reading
Patient Information Day 2026 – Annual event- Booking Open
BOOKING OPEN – ACT NOW to ensure a place. PSPA Ireland’s main event of the year, bringing together healthcare professionals, researchers, advocates, patients, carers and family members and friends in one location. This is an opportunity to learn what is … Continue reading
PSPA Ireland 