Author Archives: PSPA Ireland

About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Conversation with Dr. Séan O’Dowd, Consultant Neurologist at Tallaght University Hospital

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90% of our members say GP’s have never heard of Progressive Supranuclear Palsy

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NAI launches Report: Resourcing Neurology Services in Ireland

Resourcing of Neurology Services in Ireland : 5 years on 2015-2020 The Neurological Alliance of Ireland (NAI) is an umbrella organisation for 30 non-profit organisations including  PSPA Ireland. The NAI advocates for the rights of 800,000 people in Ireland with … Continue reading

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Living with PSP – Eileen and Terry

In this video Eileen and Terry give us a brief insight into daily life with Progressive Supranuclear Palsy . It demonstrates the impact of living with the constant risk of falls , so much a part of PSP, changing lives and life … Continue reading

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Brain Awareness Week 2021 – March 15th-21st

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Rare Disease Day Ireland

Click Here to Link to Page Raise a Toastie to Raise Awareness for Rare Diseases on 28th February Follow us on facebook : http://www.facebook/pspaireland

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Celebrate Rare Disease Day 28th February 2021

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PSPA Ireland Support Group Meetings – 2021

Support  & Information Meetings are ongoing. Support Group Meetings will be held on on Mondays on the following dates: January 18th 2021  February 8th 2021March 8th 2021April 12th 2021May 10th 2021June 14th 2021  Note that Support Meeting will be held … Continue reading

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Mums Journey with PSP

Mums Journey with PSP Click on Link above

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Living with a diagnosis of PSP

Living with a diagnosis of PSP – My Story My name is Ruth and I am 72 years old. For 53 years I have been married to Joe, who is 76 years old. Joe has had some health issues in … Continue reading

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