Author Archives: PSPA Ireland

About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Reminder: PSPA Ireland Support Group Meeting – Monday 8th May 2023 11.00h

COME ALONG AND JOIN US    Monday 9th January   Monday 13th February   Monday 13th March   Monday  3rd April   Monday  8th May   Monday 12th June   Monday 11th September   Monday  9th October   Monday 13th … Continue reading

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VHI Womens Mini Marathon Sign up and support PSPA Ireland

Put a smile on your face and join up now to support PSPA Ireland in this years VHI Women’s Mini Marathon. Bank holiday Monday 4th June 2023 Start time 12.30. Fitzwilliam Square. Sign up now: https://www.vhiwomensminimarathon.ie/ Can’t do Dublin – … Continue reading

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Upcoming events:  IPPOSI Conference 3 May 2023 Building a Data-Sharing Enabled Health Sector in Ireland

Conference delegates will meet to discuss convergence and divergence of opinion on sharing health information with patients, sharing health information within the healthcare systems system and across the broader health sector. The conference will look at access, individual care,secondary purpose … Continue reading

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Upcoming Events: Patients Deserve Better CH07 25th April 2023 – 13:00h

Launch Patients Deserve Better Neurorehabilitation teams for CHO7 This April the Patients Deserve Better campaign is calling for a community neurorehabilitation team for people with neurological conditions in HSE area CHO7. Are you living in Dublin, Kildare or West Wicklow … Continue reading

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Upcoming Events: Get Rare Aware Campaign RHA F 17th April 2023- 12.00h

There are many rare diseases and many differences yet most people with a rare disease experience the same issues such as delays in diagnosis, as lack of access to services, isolation and no access to treatment or cure. We in … Continue reading

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Living Well Programme:  Self management to manage long term health conditions -new  dates available now

What is the Living Well programme? Living Well is a free  HSE online or in person group programme designed to help people manage long term chronic health conditions. The course is delivered over seven workshops by two trained leaders, most … Continue reading

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PSPA Ireland attended the All Ireland Conference on Integrated care 

PSPA Ireland attended the All Ireland Conference on Integrated Care on 23 March 2023. 300 health and social care, clinicians, academic and non profit representatives from across Ireland attended. The conference was very interesting and forward thinking, recognising the importance … Continue reading

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Patients Deserve Better Neurorehabilitation Campaign goes to Leinster House

http://www.patientsdeservebetter.ie

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Kieron Wood: The man who was not afraid to speak out

Kieron Wood was a barrister, journalist and former RTE legal Affairs Correspondent but he was also a person who faced the challenges of a diagnosis of Progressive Supranuclear Palsy (PSP) with tenacity and bravery. When he was first diagnosed and … Continue reading

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Reminder: Support Group Meeting – Monday 13 March 2023

COME ALONG AND JOIN US    Monday 9th January   Monday 13th February   Monday 13th March   Monday  3rd April   Monday  8th May   Monday 12th June   Monday 11th September   Monday  9th October   Monday 13th … Continue reading

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