Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Patient Solutions 2026

Putting patients at the centre of health care, we often hear this repeated regularly but this conference last year moved that idea out of the shadows into the limelight and raised the bar. As it says on the home page … Continue reading

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Support Nellie Jones’s Fundraising Page

Wouldn’t that smile brighten your day ! This is Nellie and she is as lovely as she looks. Nellie is doing the VHI Women’s Mini Marathon 2026 to raise awareness and funds for PSPA Ireland and to support people and … Continue reading

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Book Your Support Meeting Now

COME ALONG AND JOIN US  PSPA Ireland Support Group Meeting- March- April 2026     Dublin     Cork:      Limerick : These meetings offers people diagnosed with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration/Syndrome (CBD/S), their carers, families and friends an  … Continue reading

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MEP’S show their support of My Neurology Nurse and Me campaign 

Hear what the MEP’s who are supporting this campaign have to say: Cynthia Ní Mhurchú MEP Supports Brain Awareness Week 2026 Billy Kelleher MEP Support Brain Awareness Week 2026 Nina Carberry MEP Supports Brain Awareness Week 2026 #myneurologynurseandme.

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WE NEED MORE NEUROLOGY NURSES

Progressive Supranuclear Palsy(PSP) and Corticobasal Degeneration (CBD) are rare progressive neurological conditions. They are under recognised, underdiagnosed and frequently misdiagnosed. We need more specialist neurology nurses in the healthcare system to support people with neurological disease. It is time to … Continue reading

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Brain Awareness Week – Update 2

Do You know that :-

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Brain Awareness Week – Update

Brain Awareness Week awareness week is a global campaign to increase public awareness about the brain and brain conditions. This week many organisations across the world will highlight the need for research and prevention and understanding of brain related concerns. … Continue reading

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Go Virtual for PSPA Ireland 

The VHI Women’s Mini Marathon sold out fast!  BUT – it is not too late to get your medal and be part of this major annual event. Tickets are still available but selling fast . You can do your 10k … Continue reading

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Support Nellie Jones fundraising for PSPA in VHI Mini Marathon

Nellie Jones is doing the VHI Mini Marathon 2026 for PSPA Ireland. Show your support for Nellie and help us to support people and families with a diagnosis of Progressive Supranuclear Palsy and Corticobasal Degeneration. Please support Nellie at  https://www.idonate.ie/fundraiser/nelliejones22Continue reading

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My Neurology Nurse and Me

My Neurology Nurse and Me awareness campaign was launched on 16th March during Brain Awareness Week.Please support the campaign Watch now :  https://www.youtube.com/watch?v=rv8Id4dQmh0  Led by us here at NAI, and supported by 16 campaign partners including PSPA Ireland. The campaign shines … Continue reading

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