Author Archives: PSPA Ireland

About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Happy Christmas – See you in the New Year

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Support Group Meeting : Book now for 9th January 2023

COME ALONG AND JOIN US    Monday 9th January   Monday 13th February   Monday 13th March   Monday  3rd April   Monday  8th May   Monday 12th June   Monday 11th September   Monday  9th October   Monday 13th … Continue reading

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Strong Response to First Launch Event for the Patients Deserve Better Campaign in CHO 6

Patients Deserve Better is a nationwide campaign led by the Neurological Alliance of Ireland and supported by twenty two national neurological charities. The campaign is calling for a community neurorehabilitation team to be established in each of the 9 CHOs … Continue reading

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Patients Deserve Better – Community Neurorehabilitation Teams for CHO6

Throughout this December we’re joining with Neurological Alliance of Ireland and 21 other organisations as part of the #patientsdeservebetter campaign to call for a local community neurorehabilitation team for CHO 6.  There is no team for adults with neurological conditions … Continue reading

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Research -SIGN UP NOW!

For more information email: Shane.Lyons@tuh.ie

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Patients Deserve Better – Call for Neurorehabilitation Teams nationwide

The Neurological Alliance of Ireland’s new Patients Deserve Better campaign calling for community neurorehabilitation teams to be put in place nationwide launches today. Only 15% of neurological patients in Ireland have access to a community neurorehabilitation team. The National Neurorehabilitation … Continue reading

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Irish Hospice Foundation Event :Living with Loss

Many of us have lost someone, some recently, others in the past few years. Grief is difficult. Coming to terms with loss can take time. Sometimes it is nice to know what support is  available when you need it. This … Continue reading

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Rare Disease Forum – Monday 28th November – Online

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Patients Deserve Better-New Campaign – Coming Soon!

Community neurorehabilitation teams provide vital care for people with a wide range of neurological conditions. However only 15% of patients have access to a community neurorehabilitation team. PSPA Ireland  will join with the Neurological Alliance of Ireland and twenty other … Continue reading

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PSP Information Day a great success

The Information Day at Tallaght University Hospital –  a great success. The fully booked meeting was chaired by Dr. Séan O’Dowd, Consultant Neurologist at TUH with guest speakers covering updates in PSP/CBD, research, speech and swallow, physiotherapy and palliative medicine. … Continue reading

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