Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Upcoming Carers and Support Group meetings 2017

Dublin Carers Meetings – Macro Community Resource Centre, 1, Green Street Dublin 7 Tuesday 7th February 2017      10.30  – 12.30 Tuesday 7th March 2017           10.30  – 12.30 Tuesday 9th May 2017              10.30  –  12.30 PSPA Ireland Support Group Meetings – Mater … Continue reading

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Peter Sarstedt, singer and songwriter dies of PSP

Where do you go to my Lovely Peter Sarstedt ,singer and songwriter dies after a six year battle with Progressive Supranuclear Palsy. Many will remember him for his chart topping hit ‘Where do you go to my Lovely’. Ar dheis … Continue reading

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NAI Campaign – Read and share Anne and Christy’s Story

“We Need Our Heads Examined” campaign calling for action to tackle the dire shortage of rehabilitation services in Ireland. Read and share Anne and Christy’s Story http://www.nai.ie/go/campaign_centre/personal_stories/living-with-huntingtons-disease Tweet “We Need Our Heads Examined” campaign bit.ly/28ZOYUu  rehab4ireland

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Irish Independent Covers Launch of “We Need Our Heads Examined”

The Irish Independent features coverage of the launch of Campaign  “We Need Our Heads Examined” in the Mansion House yesterday. The article can be read in full at http://www.independent.ie/irish-news/health/braininjured-being-denied-proper-rehabilitation-34829021.html Full details of the campaign, including how you can support it … Continue reading

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Press Release – NAI Campaign – We Need Our Heads Examined

                                                                    Press Release 23 June 2016 10 Years of Empty Promises as Successive Governments … Continue reading

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Yvonne’s Story – One day to launch of “We Need Our Heads Examined”

Yvonne struggled to cope with her young family after her aneurysm with no support once she returned home. Read Yvonne’s story with one day to go to the launch of “We Need Our Heads Examined” campaign for rehabilitation services on Thursday … Continue reading

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Fundraising Event Update – Red Tide for PSP

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PSP –Our Lives Changed

My husband was diagnosed with Progressive Supranuclear Palsy (PSP) in January 2013.  He left earth the 26th of February 2016 aged 59. On the 26th of September 2015 my husband responded badly to a prescribed medication. Though it was not … Continue reading

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CBD- Our Story

My mother had Corticobasal Degeneration (CBD) and over the course of the first 18 months from her diagnosis her mobility disimproved considerably.  We were lucky to live in Dublin, quite close to the hospital where she attended the neurologist.  However, … Continue reading

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Read Gerry’s story in the lead up to the launch of “We Need Our Heads Examined” campaign

Gerry was lucky to be able to access one of only three early supported discharge teams for stroke patients in the entire country. Read Gerry’s story in the lead up to the launch of “We Need Our Heads Examined” campaign … Continue reading

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