Category Archives: Report

Living with a diagnosis of PSP

Posted on December 9, 2020 by PSPA Ireland

Living with a diagnosis of PSP – My Story My name is Ruth and I am 72 years old. For 53 years I have been married to Joe, who is 76 years old. Joe has had some health issues in … Continue reading →

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NEW PLANNING BOOKLET LAUNCHED FOR THOSE WITH ADVANCING NEUROLOGICAL ILLNESSES

Posted on March 7, 2018 by PSPA Ireland

Planning for the Future- Information for people who have an advancing neurological Illness A collaboration between Irish Hospice Foundation and the Neurological Alliance of Ireland (NAI) have produced an information booklet for people with an advancing neurological illness, who want … Continue reading →

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Jim Logue R.I.P January 28, 2017

Posted on January 31, 2017 by PSPA Ireland

    It is with great sorrow that we announce the death of our colleague and friend Jim Logue. Jim was one of the founder members of PSPA Ireland and was committed to the organisation and its members to his last breath. He … Continue reading →

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Peter Sarstedt, singer and songwriter dies of PSP

Posted on January 10, 2017 by PSPA Ireland

Where do you go to my Lovely Peter Sarstedt ,singer and songwriter dies after a six year battle with Progressive Supranuclear Palsy. Many will remember him for his chart topping hit ‘Where do you go to my Lovely’. Ar dheis … Continue reading →

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International Rare Disease Day 2016 – NAI launches conference report

Posted on March 8, 2016 by PSPA Ireland

The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes, together with other stakeholders to explore some of the challenges and potential solutions to improving understanding of and response to the needs … Continue reading →

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