Tag Archives: PSP

Update from Keynote Conference at Brain Awareness Week   

Research & Healthcare Responses to the Challenge of Brain Conditions in Ireland.   Brain Awareness Week 2018, Keynote Conference organised by the Neurological Alliance of Ireland and the Irish Brain Council brought together some of the leading lights in brain … Continue reading

Posted in Events | Tagged ,

A letter from Kim

I never ran in my life. It was always something I believed I couldn’t do or was not able for. Peter my personal hero and father in law on the other hand has run the Dublin Marathon several times- a … Continue reading

Posted in Events, fundraisers | Tagged ,

Fit and Fabulous Mick is gearing up for the Dublin City Marathon.

Michael’s father in law John was diagnosed with Progressive Supranuclear Palsy in 2016. Michael wants to raise awareness about this devastating disease. He is asking all his friends, family, acquaintances and willing donors to support him to make a difference … Continue reading

Posted in fundraisers | Tagged , ,

Course for Carers – Dublin Neurological Institute

Will be held in the Nurse Education Centre,   Mater Misericordiae University Hospital, Nelson Street, Dublin 7. Dates:  10th  May, 24th  May, 31st  May & 7th June Time:  6.30 – 8.00 pm See document below for full details and to register. … Continue reading

Posted in Events | Tagged , , ,

Peter Sarstedt, singer and songwriter dies of PSP

Where do you go to my Lovely Peter Sarstedt ,singer and songwriter dies after a six year battle with Progressive Supranuclear Palsy. Many will remember him for his chart topping hit ‘Where do you go to my Lovely’. Ar dheis … Continue reading

Posted in Report | Tagged ,

PSP –Our Lives Changed

My husband was diagnosed with Progressive Supranuclear Palsy (PSP) in January 2013.  He left earth the 26th of February 2016 aged 59. On the 26th of September 2015 my husband responded badly to a prescribed medication. Though it was not … Continue reading

Posted in campaigns | Tagged