Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Living with PSP – Eileen and Terry

In this video Eileen and Terry give us a brief insight into daily life with Progressive Supranuclear Palsy . It demonstrates the impact of living with the constant risk of falls , so much a part of PSP, changing lives and life … Continue reading

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Brain Awareness Week 2021 – March 15th-21st

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Rare Disease Day Ireland

Click Here to Link to Page Raise a Toastie to Raise Awareness for Rare Diseases on 28th February Follow us on facebook : http://www.facebook/pspaireland

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Celebrate Rare Disease Day 28th February 2021

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PSPA Ireland Support Group Meetings – 2021

Support  & Information Meetings are ongoing. Support Group Meetings will be held on on Mondays on the following dates: January 18th 2021  February 8th 2021March 8th 2021April 12th 2021May 10th 2021June 14th 2021  Note that Support Meeting will be held … Continue reading

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Mums Journey with PSP

Mums Journey with PSP Click on Link above

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Living with a diagnosis of PSP

Living with a diagnosis of PSP – My Story My name is Ruth and I am 72 years old. For 53 years I have been married to Joe, who is 76 years old. Joe has had some health issues in … Continue reading

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Patient Organisations urge authorities to prioritise people with chronic and rare diseases

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Irish Hospice: Living with Loss

An excellent event held every year for anyone who has experienced loss.  Venue: online     Date :9th December 20   Time: 7.00pm – 8.30pm The event is free but booking is necessary, follow link below to Register for event

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Fundraiser in Memory of John Naughton

John Naughton was an active and well known person in his community. John was diagnosed with Progressive Supranuclear Palsy. Please support this fundraiser in memory of John and help us to support carers and families living  in Ireland today with … Continue reading

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