The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes, together with other stakeholders to explore some of the challenges and potential solutions to improving understanding of and response to the needs of people with rare neurological conditions in Ireland.
The aim of the event was to inform the work of the NAI in relation to advocating for the needs of people with rare neurological conditions .

Click for copy of Report below

NAI Report on Rare Diseases in Ireland