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Author Archives: PSPA Ireland
Rare Disease Day 29th February 2024
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March & April Support Meetings 2024
Progressive Supranuclear Palsy (PSP) or Corticobasal Degeneration (CBD) Support Want to meet others living with PSP and CBD or connect with past carers join us for information and support. Meetings for March & April Dublin Monday 4th March … Continue reading
The Andy O’ Connor fundraising walk raises €1390
The Andy O’Connor walk was held by his children:Tommy, Juliet, Mary,George and Caitríona and his wife Kathleen, fourteen grandchildren, five sisters and his brother in memory of a much loved father. Caitríona talks about her dad in the piece below. … Continue reading
Rare Disease Campaign I Am Number 17
1 in 17 people in Ireland will be affected by a rare disease at some stage in their lives. The 7th February saw the launch of the I am Number 17 campaign to raise awareness of rare diseases in Ireland. … Continue reading
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Christmas Fun and Frolics as Albert Ladies Hockey Club raises €920 for PSPA Ireland !
Albert Ladies Hockey Club ran their annual Christmas Santa v Elves Hockey match in aid of PSPA Ireland. Miriam Smyth, founder member of the club, lost her dear husband Aidan to the disease earlier this year. A coffee morning after … Continue reading
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Christmas Jumper Day 8th Dec. 2023 – Thank You
Thank You kindly to all who supported our Christmas Jumper Day. You have helped us to raise € 250 to support people with Progressive Supranuclear Palsy(PSP) and Corticobasal Degeneration (CBD). —————————————————————————————————— Christmas is a time to celebrate. Find out how you … Continue reading
Juliette’s Fundraiser
Well Done to Juilette Cusack who held a cake sale in the Department of Justice for PSPA Ireland. A big Thank you to all who supported this great fundraiser for people with Progressive Supranuclear Palsy. Juliette raised a fantastic €597.13
Call for Study Participants
About This is the first study of its kind in Ireland and a great opportunity to get involved . This important study sets out to gain a better understanding of the complex and progressive disorders; Progressive Supranuclear Palsy and Corticobasal … Continue reading
A Life Cut Short
We would like to express our sadness at the death of Pat O’Mahony. Pat retired from the board earlier this year. A gentleman and a professional with vast experience in the banking, financial, the Irish Medicines Board and the business … Continue reading
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