Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

PSPA Information Day May 2024 – The Day in Images

Our first PSPA Information Day was a fantastic success and well attended by PSPA members, Patients, Carers, Health Care Professionals and Researchers.This short video captures some images from the day.

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We are Living in the Moment – Poem and Video

The poem in this video was created by Maria Bailey and participants of a research project.  The research, a collaboration between PSPA Ireland, the Dept of Nursing & Midwifery, University of Limerick exploring the experiences of families and caregivers while caring … Continue reading

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Booking  fast- PSP Information Day Friday 31st May.    Don’t miss out- reserve your place now

Booking is essential. Early booking advised : info@pspaireland.ie or Tel 0873821377

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137km in 24 hours in memory of Jim McDonald  – Please Support

Wonderful Fundraising Event in Memory of Jim McDonald – Please Support Continue reading

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Exwell Medical Programme and Health Fair

ExWell medical provides a community based exercise programme for chronic illnesses. Classes are available online and at various venues around the country.  Anyone with a long term condition can get a referral from their doctor for their local venue. They … Continue reading

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Patients Deserve Better  Portlaoise campaign launch

The Neurological Alliance of Ireland (NAI) has launched a campaign calling for a dedicated Consultant Neurologist for Portlaoise hospital. Portlaoise hospital currently does not have a neurology service, despite the recommendation of the 2016 Model of Care for Neurology Services. … Continue reading

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NAI brief Oireachtas at  Leinster House  

PSPA Ireland representatives attended the presentation by  Neurological Alliance of Ireland to Oireachtas members on 24th April 2024. The presentation saw clinical healthcare leaders, patient advocates and patient organisations come together in a unified voice to call for the implementation … Continue reading

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Book NOW: PSP Information Day 31st May 2024 

Booking is essential. Early booking advised : info@pspaireland.ie or Tel 0873821377

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Patients Deserve Better in Mayo 

The Neurological Alliance of Ireland (NAI) has launched a campaign calling for a dedicatedConsultant Neurologist for Mayo hospital.Neurological patients are currently travelling up to 80 kilometres to see a Neurologist inUniversity College Hospital Galway when they could be seen more … Continue reading

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Registration Open for Bantry Hospital Campaign Event

The Neurological Alliance of Ireland has launched a campaign calling for a dedicated Consultant Neurologist for Bantry hospital. Bantry hospital currently provides some clinics for neurological patients and there is an urgent need to secure and develop a dedicated neurology … Continue reading

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