Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Red Flags for PSP – Call for Eye Specialist support

Calling all Orthoptists, Optometrists and Ophthalmologists to use their specialist skills to help signpost people with Progressive Supranuclear Palsy for earlier diagnosis. Please support us.         

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 13 March 2025  -Balance and Eye Tracking PSP

PSPA Ireland Event: Balance and Eye Tracking In Progressive Supranuclear Palsy. Date: Thursday 13 March at 11am Venue: Online – Booking Info@pspaireland.ie Join PSPA Ireland this Thursday morning to hear about the excellent research findings from the Dublin Neurological Institute … Continue reading

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Merry Christmas & Happy New Year from PSPA Ireland

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Andy O’Connor Fund raises €1,000 for PSPA Ireland

A special thank you to Kathleen O’Connor and her son Tommy pictured here receiving a donation from her local club, The River Island Card Players. Kathleen’s husband Andy had Progressive Supranuclear Palsy and passed away eleven years ago but Kathleen … Continue reading

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Thank you, Niall – Irish Life Dublin City Marathon 2024

Niall Coughlan, picture here with his training partner completed the Irish Life Dublin City Marathon in great style and raised €1775 for PSPA Ireland. Well Done!

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Thank you, David – Irish Life Dublin City Marathon 2024

David McCarrick pulled out all the stops and raised €3524 for PSPA Ireland running in the Irish Life Dublin City Marathon this year . Well Done!

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Patients Deserve Better Campaign 2024 – Success

We were proud to be partners in the Patients Deserve better campaign run by the Neurological Alliance of Ireland.   Thank you to all who supported the Patients Deserve Better campaign. In October the campaign secured multi-annual investment to ensure neurology … Continue reading

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Fundraiser in Memory of Jim McDonald has now raised €20,758

The Mc Donald family headed off to the Isle of Man to take on the 137 km Parish Walk in 24 hours for PSPA Ireland in memory of their father Jim.  Jim had progressive supranuclear palsy (PSP) and died in … Continue reading

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Rare Disease Update 2024

PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The  funding will support … Continue reading

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137 km in 24 hours for PSPA Ireland-In Memory of Jim McDonald

Congratulations! What an amazing achievement we are so proud of you all. Elaine, Paul, Eoin and Fiona took on an incredibly demanding walk, the Isle of Man Parish Walk in memory of their dad. Jim, a lovely person and father, … Continue reading

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