Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

This is MedSafety week 7-13 November 2022

Eighty two countries are getting together to encourage reporting of suspected slide effects from medication. Get involved and help us to make medications safer HPRA is the national regulator in Ireland for medicines, devices and other healthcare products. As part … Continue reading

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Running for PSPA Ireland in Dublin City Marathon on Sunday 30 October 2022 – Please Support

David McCarrick is running in the Dublin City Marathon in memory of his wonderful mother Marie who had Corticobasal Degeneration (CBD). Please support the fundraiser at  https://www.idonate.ie/fundraiser/DavidMcCarrick Come out this Sunday and cheer David on along the 26.2 mile route … Continue reading

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New Focus to Patients Deserve Better Campaign

 PSPA Ireland has been working with the Neurological Alliance of Ireland as part of their “Patients Deserve Better” campaign to call for action to tackle the shortage of specialist nurses in neurology services. A very successful pre-budget campaign led to … Continue reading

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PSP/CBD Information Day – Book now to ensure a place

Want to learn more about PSP or CBD? This is the place to be-  10.30- 11.00       Registration  11.00 – 11.05    Welcome and Opening Address  Ms. Caroline Dooley Martyn.  Chairperson PSPA Ireland  11. 05 – 11.10     Introduction – Meeting Chairperson   Dr. … Continue reading

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Research -SIGN UP NOW!

For more information email: Shane.Lyons@tuh.ie

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Patients Deserve Better – Success

Patients Deserve Better Campaign secures funding for 23 additional neurology nurses in this years Budget PSPA Ireland has been working with the Neurological Alliance of Ireland as part of their “Patients Deserve Better” campaign to call for action to tackle … Continue reading

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100K for PSP

100k for PSPA Ireland. I’m visiting various towns across Ireland to raise awareness and raise funds for PSP Ireland. Having a diagnosis of PSP or CBD is difficult . Some years ago there was no awareness, no support in Ireland … Continue reading

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PSPA Ireland Support Meeting

COME ALONG AND JOIN US PSPA Ireland Support Group Meeting on Zoom Dates for remaining of 2022:                                                                                                        Monday 12th September   Monday 10th October   Monday  5th December  Time: 11.00h – 12.00h   Friday 18th November  Time TBA The  meeting … Continue reading

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NAI  Pre-Budget launch

Neurological Alliance of Ireland Pre Budget Event: Will Your Local TDs Be There? On Tuesday 20th September the Neurological Alliance of Ireland will host a pre-budget event: providing its member organisations with the opportunity to meet with TDs and highlight … Continue reading

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World Patient Safety Day 17th September 2022

The Medications without harm. What  can you do to keep safe? Make a list of ALL the medicines and supplements you take and bring it with you to doctors appointments and visits to the pharmacy and in healthcare settings.  More … Continue reading

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