Author Archives: PSPA Ireland

About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Rare Disease Forum – Monday 28th November – Online

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Patients Deserve Better-New Campaign – Coming Soon!

Community neurorehabilitation teams provide vital care for people with a wide range of neurological conditions. However only 15% of patients have access to a community neurorehabilitation team. PSPA Ireland  will join with the Neurological Alliance of Ireland and twenty other … Continue reading

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PSP Information Day a great success

The Information Day at Tallaght University Hospital –  a great success. The fully booked meeting was chaired by Dr. Séan O’Dowd, Consultant Neurologist at TUH with guest speakers covering updates in PSP/CBD, research, speech and swallow, physiotherapy and palliative medicine. … Continue reading

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Reminder Support Group Meeting  – Monday 5th December 2022

COME ALONG AND JOIN US PSPA Ireland Support Group Meeting on Zoom Dates for remainder of 2022:                                                                                                        Monday  5th December  Time: 11.00h – 12.00h  The  meeting will offer people diagnosed with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), … Continue reading

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Congratulations and Well Done

to David McCarrick who raised a fantastic  €4,675.00 for PSPA Ireland.  David ran the Irish Life Dublin City Marathon in memory of his beautiful mum Marie.

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This is MedSafety week 7-13 November 2022

Eighty two countries are getting together to encourage reporting of suspected slide effects from medication. Get involved and help us to make medications safer HPRA is the national regulator in Ireland for medicines, devices and other healthcare products. As part … Continue reading

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Running for PSPA Ireland in Dublin City Marathon on Sunday 30 October 2022 – Please Support

David McCarrick is running in the Dublin City Marathon in memory of his wonderful mother Marie who had Corticobasal Degeneration (CBD). Please support the fundraiser at  https://www.idonate.ie/fundraiser/DavidMcCarrick Come out this Sunday and cheer David on along the 26.2 mile route … Continue reading

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New Focus to Patients Deserve Better Campaign

 PSPA Ireland has been working with the Neurological Alliance of Ireland as part of their “Patients Deserve Better” campaign to call for action to tackle the shortage of specialist nurses in neurology services. A very successful pre-budget campaign led to … Continue reading

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PSP/CBD Information Day – Book now to ensure a place

Want to learn more about PSP or CBD? This is the place to be-  10.30- 11.00       Registration  11.00 – 11.05    Welcome and Opening Address  Ms. Caroline Dooley Martyn.  Chairperson PSPA Ireland  11. 05 – 11.10     Introduction – Meeting Chairperson   Dr. … Continue reading

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Research -SIGN UP NOW!

For more information email: Shane.Lyons@tuh.ie

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