Author Archives: PSPA Ireland

Unknown's avatar

About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Sign up now -VHI Womens Mini Marathon 2016, Monday 6th June

You can run, jog or walk for PSPA Ireland Date: Bank Holiday Monday, 6th June 2016 Distance:  10K Start: Baggot Street, Dublin 2 Finish: Fitzwilliam Square, Dublin 2         How To Enter: Fill out the application form which … Continue reading

Posted in Uncategorized | Comments Off on Sign up now -VHI Womens Mini Marathon 2016, Monday 6th June

Join the annual Unity Walk 10th April 2016

PSPA Ireland have joined the Parkinson’s Association again this year for the annual Unity Walk to unite in a common voice to raise awareness of people living with PSP, CBD and Parkinson’s. This day is a great opportunity to get … Continue reading

Posted in Events, Uncategorized | Tagged | Comments Off on Join the annual Unity Walk 10th April 2016

Reminder – PSPA Ireland Support Group Meeting, Dublin – Tues. 5th April

Date:  Tuesday 5th April 2016           Time: 12.00 h- 14.00h Venue: Mater Misericordiae University Hospital, Centre for Nurse Education, Classroom 5, 1st Floor Nelson St., Dublin 7(opposite Eccles Street entrance to Hospital). Places are limited so please book by email: pspa.ireland@gmail.com or … Continue reading

Posted in Uncategorized | Comments Off on Reminder – PSPA Ireland Support Group Meeting, Dublin – Tues. 5th April

Factsheet from Neurological Alliance of Ireland on neurological conditions and the asks in the run up to the election

Election Manifesto 2016 800000 Minds Matter

Posted in Uncategorized | Leave a comment

International Rare Disease Day 2016 – NAI launches conference report

The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes, together with other stakeholders to explore some of the challenges and potential solutions to improving understanding of and response to the needs … Continue reading

Posted in Report | Tagged , , , | Comments Off on International Rare Disease Day 2016 – NAI launches conference report

Tues 15th March, TCD,Understanding and Protecting Your Brain

The NAI and the Irish Brain Council have organised a FREE evening lecture on Tuesday 15th March in Trinity College Dublin entitled “Mind Matters: Understanding and Protecting Your Brain”.   

Posted in Events | Tagged , | Comments Off on Tues 15th March, TCD,Understanding and Protecting Your Brain

Dates for your Diary 2016

PSPA Ireland bi-annual meetings with guest speaker/s are held in Dublin. We are holding a number of regional support meetings this year. These venues have been selected to facilitate travel for as many people as possible to access our meetings … Continue reading

Posted in Meetings | Comments Off on Dates for your Diary 2016

National Electronic Health Record (EHR) – What is it all about?

To find out more check out https://www.youtube.com/watch?v=XhzuAzyc_kc&feature=youtu.be Closing date for feedback 31st January 2016

Posted in Uncategorized | Leave a comment

National Policy and Strategy on Neurorehabilitation delivers nothing!

PSPA Ireland join the Neurological Alliance of Ireland in calling for government action to deliver on the promise of the Neurorehabilitation Plan  2011-2015. Read Press Release here http://www.nai.ie/go/news/press-release-government-strategy-on-rehabilitation-delivers-nothing

Posted in Uncategorized | Comments Off on National Policy and Strategy on Neurorehabilitation delivers nothing!

Cycle for PSPA Ireland – Sunday 13th September.

Cycle for PSPA Ireland – Create your own ifundraise page –  See event page for more detail

Posted in Uncategorized | Leave a comment