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Brain Awareness Week – Limerick 13th March
We are delighted to be partnering with the Neurological Alliance of Ireland during Brain Awareness week . Check out their website for further details. PSPA Ireland invites you to learn about Progressive Supranuclear Palsy and Corticobasal Degeneration at our information … Continue reading
Rare Disease Campaign I Am Number 17
1 in 17 people in Ireland will be affected by a rare disease at some stage in their lives. The 7th February saw the launch of the I am Number 17 campaign to raise awareness of rare diseases in Ireland. … Continue reading
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Christmas Fun and Frolics as Albert Ladies Hockey Club raises €920 for PSPA Ireland !
Albert Ladies Hockey Club ran their annual Christmas Santa v Elves Hockey match in aid of PSPA Ireland. Miriam Smyth, founder member of the club, lost her dear husband Aidan to the disease earlier this year. A coffee morning after … Continue reading
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Upcoming Events: Get Rare Aware Campaign RHA F 17th April 2023- 12.00h
There are many rare diseases and many differences yet most people with a rare disease experience the same issues such as delays in diagnosis, as lack of access to services, isolation and no access to treatment or cure. We in … Continue reading
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Patients Deserve Better Neurorehabilitation Campaign goes to Leinster House
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Kieron Wood: The man who was not afraid to speak out
Kieron Wood was a barrister, journalist and former RTE legal Affairs Correspondent but he was also a person who faced the challenges of a diagnosis of Progressive Supranuclear Palsy (PSP) with tenacity and bravery. When he was first diagnosed and … Continue reading
Reminder: Support Group Meeting – Monday 13 March 2023
COME ALONG AND JOIN US Monday 9th January Monday 13th February Monday 13th March Monday 3rd April Monday 8th May Monday 12th June Monday 11th September Monday 9th October Monday 13th … Continue reading
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