Author Archives: PSPA Ireland

Unknown's avatar

About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Update from Keynote Conference at Brain Awareness Week   

Research & Healthcare Responses to the Challenge of Brain Conditions in Ireland.   Brain Awareness Week 2018, Keynote Conference organised by the Neurological Alliance of Ireland and the Irish Brain Council brought together some of the leading lights in brain … Continue reading

Posted in Events | Tagged , | Comments Off on Update from Keynote Conference at Brain Awareness Week   

National Brain Awareness Week 5th- 11th March – #alteredlives

National Brain Awareness Week takes place from March 5th to 11th to raise awareness of neurological conditions.               A week of events is taking place nationwide to promote awareness of these conditions which affect … Continue reading

Posted in campaigns, Events | Comments Off on National Brain Awareness Week 5th- 11th March – #alteredlives

Rare Disease Day 28th February 2018

Rare Disease Day Official Video Continue reading

Posted in Uncategorized | Comments Off on Rare Disease Day 28th February 2018

Dublin Carers Meeting Tuesday 6th March 2018

Monthly support meetings for carers are held in Dublin. These meetings are well attended and we look forward to seeing our friends again after the summer break. All carers and family members can attend. These informal meetings give people an … Continue reading

Posted in Uncategorized | Leave a comment

Limerick Marathon Raises €6055 for Research

Presenting a cheque to Caroline Dooley Martyn and Barra OBriain are Carol and Niamh O’Sullivan who took part in the Limerick Women’s Mini Marathon in memory of their mother, Anne and their friend and neighbour, Tony Bromell.  Carol and Niamh, … Continue reading

Posted in fundraisers | Comments Off on Limerick Marathon Raises €6055 for Research

National Brain Awareness Week

National Brain Awareness Week takes place March 5th– 11th March 2018. This is an annual initiative to raise awareness about neurological conditions. This year, the theme is ‘THE LIVED EXPERIENCE’, the reality of living with a neurological condition for 800,000 … Continue reading

Posted in campaigns | Tagged , | Comments Off on National Brain Awareness Week

Dublin Carers Meeting Tuesday 6th February 2018

Monthly support meetings for carers are held in Dublin. These meetings are well attended and we look forward to seeing our friends again after the summer break. All carers and family members can attend. These informal meetings give people an … Continue reading

Posted in Uncategorized | Comments Off on Dublin Carers Meeting Tuesday 6th February 2018

PSPA Ireland Support Group Meetings 2018

Dates :      Tuesday 10th April 2018         and            Tuesday 4th September 2018 Time: 12.00h- 14.00h Venue: Mater Misericordiae University Hospital, Centre for Nurse Education, Classroom 5, 1st Floor Nelson St., Dublin … Continue reading

Posted in Uncategorized | Comments Off on PSPA Ireland Support Group Meetings 2018

A letter from Kim

I never ran in my life. It was always something I believed I couldn’t do or was not able for. Peter my personal hero and father in law on the other hand has run the Dublin Marathon several times- a … Continue reading

Posted in Events, fundraisers | Tagged , | Comments Off on A letter from Kim

Reminder: Tell us what you think survey closes on 15th December.

Tell us what you think  Deadline approaching soon for Patient Experience Survey Neurology Services. This is the first patient experience survey for users of neurology services. This survey represents an important opportunity for people with neurological conditions and their families … Continue reading

Posted in Uncategorized | Comments Off on Reminder: Tell us what you think survey closes on 15th December.