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Tag Archives: RareDisease
Rare Disease Update 2024
PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The funding will support … Continue reading
We are Living in the Moment – Poem and Video
The poem in this video was created by Maria Bailey and participants of a research project. The research, a collaboration between PSPA Ireland, the Dept of Nursing & Midwifery, University of Limerick exploring the experiences of families and caregivers while caring … Continue reading
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