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Author Archives: PSPA Ireland
Patients Deserve Better Campaign 2024 – Success
We were proud to be partners in the Patients Deserve better campaign run by the Neurological Alliance of Ireland. Thank you to all who supported the Patients Deserve Better campaign. In October the campaign secured multi-annual investment to ensure neurology … Continue reading
Fundraiser in Memory of Jim McDonald has now raised €20,758
The Mc Donald family headed off to the Isle of Man to take on the 137 km Parish Walk in 24 hours for PSPA Ireland in memory of their father Jim. Jim had progressive supranuclear palsy (PSP) and died in … Continue reading
Rare Disease Update 2024
PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The funding will support … Continue reading
137 km in 24 hours for PSPA Ireland-In Memory of Jim McDonald
Congratulations! What an amazing achievement we are so proud of you all. Elaine, Paul, Eoin and Fiona took on an incredibly demanding walk, the Isle of Man Parish Walk in memory of their dad. Jim, a lovely person and father, … Continue reading
PSPA Information Day May 2024 – The Day in Images
Our first PSPA Information Day was a fantastic success and well attended by PSPA members, Patients, Carers, Health Care Professionals and Researchers.This short video captures some images from the day.
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We are Living in the Moment – Poem and Video
The poem in this video was created by Maria Bailey and participants of a research project. The research, a collaboration between PSPA Ireland, the Dept of Nursing & Midwifery, University of Limerick exploring the experiences of families and caregivers while caring … Continue reading
Booking fast- PSP Information Day Friday 31st May. Don’t miss out- reserve your place now
Booking is essential. Early booking advised : info@pspaireland.ie or Tel 0873821377
137km in 24 hours in memory of Jim McDonald – Please Support
Wonderful Fundraising Event in Memory of Jim McDonald – Please Support Continue reading
Exwell Medical Programme and Health Fair
ExWell medical provides a community based exercise programme for chronic illnesses. Classes are available online and at various venues around the country. Anyone with a long term condition can get a referral from their doctor for their local venue. They … Continue reading
Patients Deserve Better Portlaoise campaign launch
The Neurological Alliance of Ireland (NAI) has launched a campaign calling for a dedicated Consultant Neurologist for Portlaoise hospital. Portlaoise hospital currently does not have a neurology service, despite the recommendation of the 2016 Model of Care for Neurology Services. … Continue reading
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