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Author Archives: PSPA Ireland
Andy O’Connor Fund raises €1,000 for PSPA Ireland
A special thank you to Kathleen O’Connor and her son Tommy pictured here receiving a donation from her local club, The River Island Card Players. Kathleen’s husband Andy had Progressive Supranuclear Palsy and passed away eleven years ago but Kathleen … Continue reading
Thank you, Niall – Irish Life Dublin City Marathon 2024
Niall Coughlan, picture here with his training partner completed the Irish Life Dublin City Marathon in great style and raised €1775 for PSPA Ireland. Well Done!
Thank you, David – Irish Life Dublin City Marathon 2024
David McCarrick pulled out all the stops and raised €3524 for PSPA Ireland running in the Irish Life Dublin City Marathon this year . Well Done!
Patients Deserve Better Campaign 2024 – Success
We were proud to be partners in the Patients Deserve better campaign run by the Neurological Alliance of Ireland. Thank you to all who supported the Patients Deserve Better campaign. In October the campaign secured multi-annual investment to ensure neurology … Continue reading
Fundraiser in Memory of Jim McDonald has now raised €20,758
The Mc Donald family headed off to the Isle of Man to take on the 137 km Parish Walk in 24 hours for PSPA Ireland in memory of their father Jim. Jim had progressive supranuclear palsy (PSP) and died in … Continue reading
Rare Disease Update 2024
PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The funding will support … Continue reading
137 km in 24 hours for PSPA Ireland-In Memory of Jim McDonald
Congratulations! What an amazing achievement we are so proud of you all. Elaine, Paul, Eoin and Fiona took on an incredibly demanding walk, the Isle of Man Parish Walk in memory of their dad. Jim, a lovely person and father, … Continue reading
PSPA Information Day May 2024 – The Day in Images
Our first PSPA Information Day was a fantastic success and well attended by PSPA members, Patients, Carers, Health Care Professionals and Researchers.This short video captures some images from the day.
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We are Living in the Moment – Poem and Video
The poem in this video was created by Maria Bailey and participants of a research project. The research, a collaboration between PSPA Ireland, the Dept of Nursing & Midwifery, University of Limerick exploring the experiences of families and caregivers while caring … Continue reading
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