Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

National Brain Awareness Week

National Brain Awareness Week takes place March 5th– 11th March 2018. This is an annual initiative to raise awareness about neurological conditions. This year, the theme is ‘THE LIVED EXPERIENCE’, the reality of living with a neurological condition for 800,000 … Continue reading

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Dublin Carers Meeting Tuesday 6th February 2018

Monthly support meetings for carers are held in Dublin. These meetings are well attended and we look forward to seeing our friends again after the summer break. All carers and family members can attend. These informal meetings give people an … Continue reading

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PSPA Ireland Support Group Meetings 2018

Dates :      Tuesday 10th April 2018         and            Tuesday 4th September 2018 Time: 12.00h- 14.00h Venue: Mater Misericordiae University Hospital, Centre for Nurse Education, Classroom 5, 1st Floor Nelson St., Dublin … Continue reading

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A letter from Kim

I never ran in my life. It was always something I believed I couldn’t do or was not able for. Peter my personal hero and father in law on the other hand has run the Dublin Marathon several times- a … Continue reading

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Reminder: Tell us what you think survey closes on 15th December.

Tell us what you think  Deadline approaching soon for Patient Experience Survey Neurology Services. This is the first patient experience survey for users of neurology services. This survey represents an important opportunity for people with neurological conditions and their families … Continue reading

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Fundraising for Research into PSP in Limerick

What a turnout! 20 fabulous ladies ran and walked in the Cook Limerick Women’s Mini Marathon to raise funds for much needed research. WELL DONE ladies and Thank You for your enthusiasm and much valued support.   Show your support now … Continue reading

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Richie and Benny’s Dublin Marathon

         When their good friend and colleague’s father was diagnosed with PSP Richie Byrne and Benny O’Grady donned their magic PSPA Ireland T-shirt and transformed into Batman and Robin to do the Dublin City Marathon on 29th … Continue reading

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Michael Gormley raises €2276.21

Congratulations and a Big Thank You to Fit and Fabulous Mick who wears the T-shirt with pride and completed the Dublin City Marathon in 3hr 36mins beating his previous record. A great run and a great guy who wanted to … Continue reading

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Dublin Carers Meeting Tuesday 7th Nov 2017

Monthly support meetings for carers are held in Dublin. These meetings are well attended and we look forward to seeing our friends again after the summer break. All carers and family members can attend. These informal meetings give people an … Continue reading

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Fit and Fabulous Mick is gearing up for the Dublin City Marathon.

Michael’s father in law John was diagnosed with Progressive Supranuclear Palsy in 2016. Michael wants to raise awareness about this devastating disease. He is asking all his friends, family, acquaintances and willing donors to support him to make a difference … Continue reading

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