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Author Archives: PSPA Ireland
Go Virtual for PSPA Ireland
The VHI Women’s Mini Marathon sold out fast! BUT – it is not too late to get your medal and be part of this major annual event. Tickets are still available but selling fast . You can do your 10k … Continue reading
Support Nellie Jones fundraising for PSPA in VHI Mini Marathon
Nellie Jones is doing the VHI Mini Marathon 2026 for PSPA Ireland. Show your support for Nellie and help us to support people and families with a diagnosis of Progressive Supranuclear Palsy and Corticobasal Degeneration. Please support Nellie at https://www.idonate.ie/fundraiser/nelliejones22 … Continue reading
My Neurology Nurse and Me
On Monday, March 16th, NAI will kick start Brain Awareness Week by hosting a launch webinar: My Neurology Nurse And Me – Highlighting the Vital Role of Nurse Specialists in Neurological Care My Neurology Nurse And Me is an awareness … Continue reading
Sligo Support Meeting has been cancelled
Revised date will be notified shortly.
PSPA Ireland Supports NAI campaign – My Neurology Nurse and Me
PSPA Ireland are delighted to partner with the NAI campaign to shine a spotlight on the vital and often under-recognised role of neurology nurse specialists in supporting people living with neurological conditions across Ireland. Specialist neurology nurses are at the … Continue reading
Could it be Corticobasal Degeneration
Professor Huw Morris in this video For PSPA UK discusses CBD in this informative video.
Progressive Supranuclear Palsy (PSP) in the news
The recent death of Rev. Jesse Jackson highlighted Progressive Supranuclear Palsy (PSP). In this clip Dr Deborah Hall answers many of the common questions PSPA Ireland receives around a diagnosis of Progressive Supranuclear Palsy
Rare Disease Day 2026
Rare Disease Day takes place on 28th February . This is a global awareness campaign advocating for fairness in social opportunity, healthcare and access to diagnosis and treatments. It is organised by EURODIS and 70 national patient alliances aiming to … Continue reading
Neurology Nursing: A New Era in Education
Neurology Nursing: A New Era in Education was hosted by RCSI School of Nursing and Midwifery in partnership with the Neurological Alliance of Ireland, the National Clinical Programme for Neurology, FutureNeuro and the Irish Neurology Nursing Forum. The event saw … Continue reading
Keep Hope Alive – Rev. Jesse Jackson
Rev. Jesse Jackson died peacefully at home on 17 February 2026 surrounded by his family. Our thoughts are with them in their grief. Rev.Jesse Jackson was first diagnosed with Parkinson’s Disease, subsequently in April 2025 he was re-diagnosed with Progressive … Continue reading
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