Author Archives: PSPA Ireland

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About PSPA Ireland

PSPA Ireland is the national support organisation for people affected by the neurodegenerative brain diseases: Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD).

Rare Disease Day 2026

Rare Disease Day takes place on 28th February . This is a global awareness campaign advocating for fairness in social opportunity, healthcare and access to diagnosis and treatments. It is organised by EURODIS and 70 national patient alliances aiming to … Continue reading

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Neurology Nursing: A New Era in Education

Neurology Nursing: A New Era in Education was hosted by RCSI School of Nursing and Midwifery in partnership with the Neurological Alliance of Ireland, the National Clinical Programme for Neurology, FutureNeuro and the Irish Neurology Nursing Forum. The event saw … Continue reading

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Keep Hope Alive – Rev. Jesse Jackson

Rev. Jesse Jackson died peacefully at home on 17 February 2026 surrounded by his family. Our thoughts are with them in their grief. Rev.Jesse Jackson was first diagnosed with Parkinson’s Disease, subsequently in April 2025 he was re-diagnosed with Progressive … Continue reading

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Kilmeen Macra na Feirme raised €1500

Thank you Macra Kilmeen and all those who donated to the Tractor Run on 7th December and raised a fantastic €1500 for PSPA Ireland. Christopher Mc Carthy and Ciara O’Regan presenting a cheque at the Cork support meeting to Caroline … Continue reading

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Sligo Support Group Meeting 2026

PSPA Ireland –  Sligo Support Group Meeting 2026 If you live in Sligo or the surrounding counties you are very welcome to join us on Date: Friday 27th February 2026Time: 11.00am – 12.30pm These meetings offer people diagnosed with Progressive … Continue reading

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Employees of State Street Ireland Donate

Employees of State Street Ireland Donate €1250 To PSPA Ireland Louise Leary presenting a cheque for €1250 on behalf of the employees of State Street Ireland Charitable Trust.  We were delighted to receive this donation and would like to thank … Continue reading

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Living With Loss

National Bereavement Line  1800 80 70 77 Information and Support Line: 1800 60 70 66  #BeGriefAware #NGAW2026 @IrishHospice

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National Grief Awareness Week 27th Jan – 1st Feb

National Grief Awareness Week runs from  27 January – 02 February.  Learning more about grief can help someone before and during the grieving process and can also help the people supporting them. It is important to be aware that: Irish … Continue reading

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Recruiting Now – Join us at the Reset Festival Wed 21 Jan 2026

PSPA Ireland is looking for volunteers to join our team. Call to our stand at the Reset Festival . Did you know that one of the most important wellness interventions is volunteering? It increases happiness, improves psychological and physical health, … Continue reading

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PSPA Ireland Support Group Meeting- February 2026

COME ALONG AND JOIN US  – IN PERSON These meetings offers people diagnosed with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration/Syndrome (CBD/S), their carers, families and friends an  opportunity to meet with us, learn about the condition, ask questions, share  … Continue reading

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