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Rare Disease Update 2024
PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The funding will support … Continue reading
Rare Disease Day 29th February 2024
Post advertising Rare Disease day and showing video Continue reading
Congratulations and Well Done
to David McCarrick who raised a fantastic €4,675.00 for PSPA Ireland. David ran the Irish Life Dublin City Marathon in memory of his beautiful mum Marie.
In Memory of John Naughton
Healys Funeral Directors set up a fundraiser in memory of John Naughton and raised €2,270.00 John Naughton was a well loved and respected man in his community and will be sadly missed by all.
Fundraiser in memory of Tom Gilbert.
Please support the Fundraiser in memory of Tom Gilbert. Tom’s daughter Sue set up the memorial page in his honor to raise funds to support PSPA Ireland. “Tom is sorely missed by his 4 daughters and 9 grandkids. “It’s a … Continue reading
Patient Organisations urge authorities to prioritise people with chronic and rare diseases
Posted in campaigns
Tagged #covid19, #pspireland
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COVID-19 – Information Booklet
HSE notice on Covid 19 Continue reading
COVID-19 – Social Distancing Guidelines
HSE notice on Covid 19 Continue reading
COVID-19 – Symptoms and Prevention
HSE notice on Covid 19 Continue reading