Tag Archives: #pspireland

Rare Disease Update 2024

PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The  funding will support … Continue reading

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Rare Disease Day 29th February 2024

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Congratulations and Well Done

to David McCarrick who raised a fantastic  €4,675.00 for PSPA Ireland.  David ran the Irish Life Dublin City Marathon in memory of his beautiful mum Marie.

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In Memory of John Naughton

Healys Funeral Directors set up a fundraiser in memory of John Naughton and raised €2,270.00 John Naughton was a well loved and respected man in his community and will be sadly missed by all. 

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Fundraiser in memory of Tom Gilbert. 

Please support the Fundraiser in memory of Tom Gilbert.  Tom’s daughter Sue set up the memorial page in his honor to raise funds to support PSPA Ireland. “Tom is sorely missed by his 4 daughters and 9 grandkids. “It’s a … Continue reading

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Patient Organisations urge authorities to prioritise people with chronic and rare diseases

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COVID-19 – Information Booklet

HSE notice on Covid 19 Continue reading

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COVID-19 – Social Distancing Guidelines

HSE notice on Covid 19 Continue reading

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COVID-19 – Symptoms and Prevention

HSE notice on Covid 19 Continue reading

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