Category Archives: Uncategorized

Calls for Delivery of Neurorehabilitation Teams

PSPA Ireland attended with our colleagues in the NAI to campaign for delivery of the promised neurorehabilitation teams. Please support this campaign 

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Support meetings 2025 Spring Summer

COME ALONG AND JOIN US  PSPA Ireland Support Group Meeting 2025  In person These meetings offer people diagnosed with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration/Syndrome (CBD/S), their carers, families and friends an  opportunity to meet with us, learn about … Continue reading

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Thank you, David – Irish Life Dublin City Marathon 2024

David McCarrick pulled out all the stops and raised €3524 for PSPA Ireland running in the Irish Life Dublin City Marathon this year . Well Done!

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Patients Deserve Better Campaign 2024 – Success

We were proud to be partners in the Patients Deserve better campaign run by the Neurological Alliance of Ireland.   Thank you to all who supported the Patients Deserve Better campaign. In October the campaign secured multi-annual investment to ensure neurology … Continue reading

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Fundraiser in Memory of Jim McDonald has now raised €20,758

The Mc Donald family headed off to the Isle of Man to take on the 137 km Parish Walk in 24 hours for PSPA Ireland in memory of their father Jim.  Jim had progressive supranuclear palsy (PSP) and died in … Continue reading

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Rare Disease Update 2024

PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The  funding will support … Continue reading

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137 km in 24 hours for PSPA Ireland-In Memory of Jim McDonald

Congratulations! What an amazing achievement we are so proud of you all. Elaine, Paul, Eoin and Fiona took on an incredibly demanding walk, the Isle of Man Parish Walk in memory of their dad. Jim, a lovely person and father, … Continue reading

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PSPA Information Day May 2024 – The Day in Images

Our first PSPA Information Day was a fantastic success and well attended by PSPA members, Patients, Carers, Health Care Professionals and Researchers.This short video captures some images from the day.

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NAI brief Oireachtas at  Leinster House  

PSPA Ireland representatives attended the presentation by  Neurological Alliance of Ireland to Oireachtas members on 24th April 2024. The presentation saw clinical healthcare leaders, patient advocates and patient organisations come together in a unified voice to call for the implementation … Continue reading

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Launch of Patients Deserve Better campaign for Regional Neurology Services

Launch of Patients Deserve Better Campaign Poster Continue reading

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