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137 km in 24 hours for PSPA Ireland-In Memory of Jim McDonald
Congratulations! What an amazing achievement we are so proud of you all. Elaine, Paul, Eoin and Fiona took on an incredibly demanding walk, the Isle of Man Parish Walk in memory of their dad. Jim, a lovely person and father, … Continue reading
PSPA Information Day May 2024 – The Day in Images
Our first PSPA Information Day was a fantastic success and well attended by PSPA members, Patients, Carers, Health Care Professionals and Researchers.This short video captures some images from the day.
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NAI brief Oireachtas at Leinster House
PSPA Ireland representatives attended the presentation by Neurological Alliance of Ireland to Oireachtas members on 24th April 2024. The presentation saw clinical healthcare leaders, patient advocates and patient organisations come together in a unified voice to call for the implementation … Continue reading
Launch of Patients Deserve Better campaign for Regional Neurology Services
Launch of Patients Deserve Better Campaign Poster Continue reading
Brain Awareness Week – Limerick 13th March
We are delighted to be partnering with the Neurological Alliance of Ireland during Brain Awareness week . Check out their website for further details. PSPA Ireland invites you to learn about Progressive Supranuclear Palsy and Corticobasal Degeneration at our information … Continue reading
Rare Disease Campaign I Am Number 17
1 in 17 people in Ireland will be affected by a rare disease at some stage in their lives. The 7th February saw the launch of the I am Number 17 campaign to raise awareness of rare diseases in Ireland. … Continue reading
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Christmas Fun and Frolics as Albert Ladies Hockey Club raises €920 for PSPA Ireland !
Albert Ladies Hockey Club ran their annual Christmas Santa v Elves Hockey match in aid of PSPA Ireland. Miriam Smyth, founder member of the club, lost her dear husband Aidan to the disease earlier this year. A coffee morning after … Continue reading
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Upcoming Events: Get Rare Aware Campaign RHA F 17th April 2023- 12.00h
There are many rare diseases and many differences yet most people with a rare disease experience the same issues such as delays in diagnosis, as lack of access to services, isolation and no access to treatment or cure. We in … Continue reading
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PSPA Ireland 