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Patients Deserve Better Campaign 2024 – Success
We were proud to be partners in the Patients Deserve better campaign run by the Neurological Alliance of Ireland. Thank you to all who supported the Patients Deserve Better campaign. In October the campaign secured multi-annual investment to ensure neurology … Continue reading
Fundraiser in Memory of Jim McDonald has now raised €20,758
The Mc Donald family headed off to the Isle of Man to take on the 137 km Parish Walk in 24 hours for PSPA Ireland in memory of their father Jim. Jim had progressive supranuclear palsy (PSP) and died in … Continue reading
Rare Disease Update 2024
PSPA Ireland welcomed the announcement in November 2024 by Minister Stephen Donnolly, TD of a new funding allocation for rare diseases bringing the total to 6.5 million in 2025 and rising to 8 million in 2026. The funding will support … Continue reading
137 km in 24 hours for PSPA Ireland-In Memory of Jim McDonald
Congratulations! What an amazing achievement we are so proud of you all. Elaine, Paul, Eoin and Fiona took on an incredibly demanding walk, the Isle of Man Parish Walk in memory of their dad. Jim, a lovely person and father, … Continue reading
PSPA Information Day May 2024 – The Day in Images
Our first PSPA Information Day was a fantastic success and well attended by PSPA members, Patients, Carers, Health Care Professionals and Researchers.This short video captures some images from the day.
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NAI brief Oireachtas at Leinster House
PSPA Ireland representatives attended the presentation by Neurological Alliance of Ireland to Oireachtas members on 24th April 2024. The presentation saw clinical healthcare leaders, patient advocates and patient organisations come together in a unified voice to call for the implementation … Continue reading
Launch of Patients Deserve Better campaign for Regional Neurology Services
Launch of Patients Deserve Better Campaign Poster Continue reading
Brain Awareness Week – Limerick 13th March
We are delighted to be partnering with the Neurological Alliance of Ireland during Brain Awareness week . Check out their website for further details. PSPA Ireland invites you to learn about Progressive Supranuclear Palsy and Corticobasal Degeneration at our information … Continue reading
Rare Disease Campaign I Am Number 17
1 in 17 people in Ireland will be affected by a rare disease at some stage in their lives. The 7th February saw the launch of the I am Number 17 campaign to raise awareness of rare diseases in Ireland. … Continue reading
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